Wyatt’s Story
Wyatt had Dravet syndrome, a rare and severe form of epilepsy that made life incredibly difficult. He faced more seizures, hospital stays, medications, and challenges than any child ever should. But through it all, Wyatt showed a strength and resilience that inspired everyone who knew him. His diagnosis was part of his story, but it never defined who he was.
Wyatt loved his German Shepherd, “Icky B,” watching Alvin and the Chipmunks, learning new things, giving the very best hugs, and cruising around in his little coupe car with the biggest smile on his face. He found joy in the little moments and had a way of making everyone around him smile right along with him.
Though Wyatt’s time on Earth was far too short, the love he left behind is endless. He is deeply missed by his mom, dad, little brother, and the countless family members, friends, doctors, and advocates who loved him so much. His story continues to inspire others to learn about Dravet syndrome, support research, and cherish every moment with the people they love.
Wyatt’s legacy isn’t defined by the challenges he faced—it’s defined by the courage he showed, the joy he spread, and the love he gave so freely. He will forever be remembered as a brave little boy with the biggest heart, whose light continues to shine in the lives of everyone who knew him.
It is impossible to put into words what Walk With You has meant to our family.
When we lost Wyatt, our entire world changed in an instant. We were heartbroken, overwhelmed, and trying to figure out how to survive something no parent should ever have to experience. Walk With You stepped in during that unimaginable time and wrapped our family in love and support.
They helped cover Wyatt’s funeral expenses, taking away a burden that no grieving family should have to worry about. They created beautiful stickers to honor Wyatt, connected us with other bereaved parents who truly understood our pain, and introduced us to countless resources that have helped us navigate this journey. Every conversation, every act of kindness, and every resource they shared reminded us that we weren’t alone.
More than anything, Walk With You has given us hope and a community. They’ve honored Wyatt’s life, stood beside us through our grief, and continued to support our family long after everyone else returned to their normal lives. Their compassion has made an incredible difference in our healing, and we will never be able to thank them enough.
Because of Walk With You, we have found people who understand, resources we never knew existed, and reminders that Wyatt’s life continues to make an impact. They will always hold a special place in our hearts, and we are forever grateful for everything they’ve done for our family.
-Madeleine and Dylan, Wyatt's Mom and Dad (IA)
Become a donor
Stories like this would not be possible without the support of our donors. If you are able and would like to support Walk With You, please consider donating or making a pledge today.
